The Citizen Participation and Public Petitions Committee will conclude its work this Parliament in March 2026 ahead of the next Scottish Parliament election. So the Committee has time to complete its work, it has agreed not to consider petitions submitted after 10 October.
The Committee will continue to meet but given the volume of petitions and agreed work programme it is unlikely that the Committee would be able to meaningfully progress work on petitions submitted after 10 October ahead of the election. Petitions lodged after this date will not fall when the Parliament is dissolved and will be for the successor committee to consider in the new session.
If you are seeking urgent action or policy change please contact one of your 8 MSPs or the Scottish Government directly.
Under consideration PE2080: Implement the recommended screening guidelines for people with Li Fraumeni Syndrome
Calling on the Scottish Parliament to urge the Scottish Government to implement screening for people with, or at risk of, Li Fraumeni Syndrome (TP53 mutation), in line with the guidelines recommended by the UK Cancer Genetics Group.
Previous action taken
I have made a complaint to NHS Greater Glasgow and Clyde.
I have also recently contacted my local MSP and my MP for East Renfrewshire.
Background information
Li Fraumeni TP53 mutation is a genetic syndrome that predisposes a person to cancer, usually of an aggressive type.
The UK Cancer Genetics Group (UKCGG) have made recommendations for screening which have been implemented in parts of England, however they have not been implemented in Scotland. I am calling on the Scottish Government to implement screening for Li Fraumeni patients in line with the guidelines set out in the UKCGG paper in the Journal of Medical Genetics.
1,033 signatures
This petition is now under consideration
Click here for further information about the consideration of this petition.